Please use this identifier to cite or link to this item: http://hdl.handle.net/11452/24727
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dc.contributor.authorBodur, Hatice-
dc.contributor.authorAtaman, Şebnem-
dc.contributor.authorBuğdaycı, Derya Soy-
dc.contributor.authorRezvani, Aylin-
dc.contributor.authorNas, Kemal-
dc.contributor.authorUzunca, Kaan-
dc.contributor.authorEmlakçıoğlu, Emel-
dc.contributor.authorKaratepe, Altınay Göksel-
dc.contributor.authorDurmuş, Bekir-
dc.contributor.authorSezgin, Melek-
dc.contributor.authorAyhan, Figen-
dc.contributor.authorYazgan, Pelin-
dc.contributor.authorDuruöz, Tuncay-
dc.contributor.authorYener, Mahmut-
dc.contributor.authorGürğan, Alev-
dc.contributor.authorKırnap, Mehmet-
dc.contributor.authorÇakar, Engin-
dc.contributor.authorSoydemir, Raikan-
dc.contributor.authorÇapkın, Erhan-
dc.contributor.authorTekeoğlu, İbrahim-
dc.contributor.authorAydın, Gülümser-
dc.contributor.authorGünendi, Zafer-
dc.contributor.authorNacır, Barış-
dc.contributor.authorŞallı, Ali-
dc.contributor.authorÖztürk, Cihat-
dc.contributor.authorMemiş, Asuman-
dc.contributor.authorTuran, Yasemin-
dc.contributor.authorKozanoğlu, Erkan-
dc.contributor.authorSivrioğlu, Konçuy-
dc.date.accessioned2022-02-28T09:25:30Z-
dc.date.available2022-02-28T09:25:30Z-
dc.date.issued2012-01-
dc.identifier.citationBodur, H. vd. (2012). "Description of the registry of patients with ankylosing spondylitis in Turkey: TRASD-IP". Rheumatology International, 32(1), 169-176.en_US
dc.identifier.issn0172-8172-
dc.identifier.issn1437-160X-
dc.identifier.urihttps://doi.org/10.1007/s00296-010-1599-7-
dc.identifier.urihttps://link.springer.com/article/10.1007/s00296-010-1599-7-
dc.identifier.urihttp://hdl.handle.net/11452/24727-
dc.description.abstractA web-based application patient follow-up program was developed to create a registry of patients with ankylosing spondylitis (AS) by the Turkiye Romatizma Arastirma Savas Dernegi (TRASD) AS Study Group. This study describes the methodological background and patient characteristics. The patient follow-up program is a web-based questionnaire, which contains sections on socio-demographic data, anamnesis, personal and family history, systemic and musculoskeletal examination, laboratory and imaging data and treatment. Between October 1, 2007 and February 28, 2009, 1,381 patients from 41 centers were included in the registry (1,038 males [75.2%]; mean age 39.5 +/- A 10.7 years). Mean disease duration was 12.1 +/- A 8.5 years, and mean time from initial symptom to diagnosis was 5 +/- A 6.8 years (median 2 years). HLA-B27 positivity was detected in 73.7% of 262 patients tested. Manifestations of extraarticular involvement were anterior uveitis (13.2%), psoriasis and other skin and mucous membrane lesions (6%) and inflammatory bowel disease (3.8%). The prevalence of peripheral arthritis was 11.2%. In 51.7% of patients, the Bath AS Disease Activity Index was a parts per thousand yen4. But since our patients consisted of the ones with more severe disease who referred to the tertiary centers and needed a regular follow-up, they may not represent the general AS population. Disease-modifying anti-rheumatic drugs were being used by 41.9% of patients, with 16.4% using anti-TNF agents. TRASD-IP (Izlem Programi: Follow-up program) is the first AS registry in Turkey. Such databases are very useful and provide a basis for data collection from large numbers of subjects. TRASD-IP gives information on the clinical and demographic profiles of patients, and the efficacy and safety of anti-TNF drugs, examines the impact on quality of life, and provides real-life data that may be used in cost-effectiveness analyses.en_US
dc.description.sponsorshipWyeth/Pfizer Companyen_US
dc.language.isoenen_US
dc.publisherSpringer Heidelbergen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectRheumatologyen_US
dc.subjectAnkylosing spondylitisen_US
dc.subjectPatient registryen_US
dc.subjectQuality-of-lifeen_US
dc.subjectRheumatoid-arthritisen_US
dc.subjectReliabilityen_US
dc.subjectValidityen_US
dc.subject.meshAdulten_US
dc.subject.meshAntirheumatic agentsen_US
dc.subject.meshArthritisen_US
dc.subject.meshComorbidityen_US
dc.subject.meshFemaleen_US
dc.subject.meshFollow-up studiesen_US
dc.subject.meshHumansen_US
dc.subject.meshInterneten_US
dc.subject.meshMaleen_US
dc.subject.meshMiddle ageden_US
dc.subject.meshPrevalenceen_US
dc.subject.meshQuality of lifeen_US
dc.subject.meshQuestionnairesen_US
dc.subject.meshRegistriesen_US
dc.subject.meshRetrospective studiesen_US
dc.subject.meshSeverity of illness indexen_US
dc.subject.meshSpondylitis, ankylosingen_US
dc.subject.meshTreatment outcomeen_US
dc.subject.meshTumor necrosis factor-alphaen_US
dc.subject.meshTurkeyen_US
dc.titleDescription of the registry of patients with ankylosing spondylitis in Turkey: TRASD-IPen_US
dc.typeArticleen_US
dc.identifier.wos000299007300027tr_TR
dc.identifier.scopus2-s2.0-84857115884tr_TR
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergitr_TR
dc.contributor.departmentUludağ Üniversitesi/Tıp Fakültesi.tr_TR
dc.identifier.startpage169tr_TR
dc.identifier.endpage176tr_TR
dc.identifier.volume32tr_TR
dc.identifier.issue1tr_TR
dc.relation.journalRheumatology Internationalen_US
dc.contributor.buuauthorAltan, Lale-
dc.contributor.researcheridAAH-1652-2021tr_TR
dc.relation.collaborationYurt içitr_TR
dc.relation.collaborationSanayitr_TR
dc.identifier.pubmed20711591tr_TR
dc.subject.wosRheumatologyen_US
dc.indexed.wosSCIEen_US
dc.indexed.scopusScopusen_US
dc.indexed.pubmedPubmeden_US
dc.wos.quartileQ3en_US
dc.contributor.scopusid6603281363tr_TR
dc.subject.scopusAnkylosing Spondylitis; Sacroiliac Joint; Spondylarthropathiesen_US
dc.subject.emtreeDisease modifying antirheumatic drugen_US
dc.subject.emtreeHla b27 antigenen_US
dc.subject.emtreeAdulten_US
dc.subject.emtreeAnamnesisen_US
dc.subject.emtreeAnkylosing spondylitisen_US
dc.subject.emtreeArthritisen_US
dc.subject.emtreeArticleen_US
dc.subject.emtreeCost effectiveness analysisen_US
dc.subject.emtreeDisease courseen_US
dc.subject.emtreeDisease durationen_US
dc.subject.emtreeDisease registryen_US
dc.subject.emtreeDrug efficacyen_US
dc.subject.emtreeDrug safetyen_US
dc.subject.emtreeEnteritisen_US
dc.subject.emtreeFamily historyen_US
dc.subject.emtreeFemaleen_US
dc.subject.emtreeFollow upen_US
dc.subject.emtreeHealth surveyen_US
dc.subject.emtreeHumanen_US
dc.subject.emtreeInterneten_US
dc.subject.emtreeIridocyclitisen_US
dc.subject.emtreeLaboratory testen_US
dc.subject.emtreeMajor clinical studyen_US
dc.subject.emtreeMaleen_US
dc.subject.emtreeMedical examinationen_US
dc.subject.emtreePrevalenceen_US
dc.subject.emtreePriority journalen_US
dc.subject.emtreePsoriasisen_US
dc.subject.emtreeQuality of lifeen_US
dc.subject.emtreeTurkey (republic)en_US
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