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Başlık: Description of the registry of patients with ankylosing spondylitis in Turkey: TRASD-IP
Yazarlar: Bodur, Hatice
Ataman, Şebnem
Buğdaycı, Derya Soy
Rezvani, Aylin
Nas, Kemal
Uzunca, Kaan
Emlakçıoğlu, Emel
Karatepe, Altınay Göksel
Durmuş, Bekir
Sezgin, Melek
Ayhan, Figen
Yazgan, Pelin
Duruöz, Tuncay
Yener, Mahmut
Gürğan, Alev
Kırnap, Mehmet
Çakar, Engin
Soydemir, Raikan
Çapkın, Erhan
Tekeoğlu, İbrahim
Aydın, Gülümser
Günendi, Zafer
Nacır, Barış
Şallı, Ali
Öztürk, Cihat
Memiş, Asuman
Turan, Yasemin
Kozanoğlu, Erkan
Sivrioğlu, Konçuy
Uludağ Üniversitesi/Tıp Fakültesi.
Altan, Lale
AAH-1652-2021
6603281363
Anahtar kelimeler: Rheumatology
Ankylosing spondylitis
Patient registry
Quality-of-life
Rheumatoid-arthritis
Reliability
Validity
Yayın Tarihi: Oca-2012
Yayıncı: Springer Heidelberg
Atıf: Bodur, H. vd. (2012). "Description of the registry of patients with ankylosing spondylitis in Turkey: TRASD-IP". Rheumatology International, 32(1), 169-176.
Özet: A web-based application patient follow-up program was developed to create a registry of patients with ankylosing spondylitis (AS) by the Turkiye Romatizma Arastirma Savas Dernegi (TRASD) AS Study Group. This study describes the methodological background and patient characteristics. The patient follow-up program is a web-based questionnaire, which contains sections on socio-demographic data, anamnesis, personal and family history, systemic and musculoskeletal examination, laboratory and imaging data and treatment. Between October 1, 2007 and February 28, 2009, 1,381 patients from 41 centers were included in the registry (1,038 males [75.2%]; mean age 39.5 +/- A 10.7 years). Mean disease duration was 12.1 +/- A 8.5 years, and mean time from initial symptom to diagnosis was 5 +/- A 6.8 years (median 2 years). HLA-B27 positivity was detected in 73.7% of 262 patients tested. Manifestations of extraarticular involvement were anterior uveitis (13.2%), psoriasis and other skin and mucous membrane lesions (6%) and inflammatory bowel disease (3.8%). The prevalence of peripheral arthritis was 11.2%. In 51.7% of patients, the Bath AS Disease Activity Index was a parts per thousand yen4. But since our patients consisted of the ones with more severe disease who referred to the tertiary centers and needed a regular follow-up, they may not represent the general AS population. Disease-modifying anti-rheumatic drugs were being used by 41.9% of patients, with 16.4% using anti-TNF agents. TRASD-IP (Izlem Programi: Follow-up program) is the first AS registry in Turkey. Such databases are very useful and provide a basis for data collection from large numbers of subjects. TRASD-IP gives information on the clinical and demographic profiles of patients, and the efficacy and safety of anti-TNF drugs, examines the impact on quality of life, and provides real-life data that may be used in cost-effectiveness analyses.
URI: https://doi.org/10.1007/s00296-010-1599-7
https://link.springer.com/article/10.1007/s00296-010-1599-7
http://hdl.handle.net/11452/24727
ISSN: 0172-8172
1437-160X
Koleksiyonlarda Görünür:Scopus
Web of Science

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